In accordance with the provisions of Law No. 78-17 relating to data, files and freedoms and the General Data Protection Regulation (Regulation (EU) 2016/679), you have the following rights:
• the right to request access, rectification, erasure or limitation of your data collected in the context of research. You can also access all of your medical data directly or through a doctor of your choice, pursuant to the provisions of Article L. 1111-7 of the Public Health Code;
• the right to object to the collection and transmission of your data covered by medical secrecy;
• the right to retrieve all the data concerning you with a view to transmitting it to another data controller (right to portability);
• the right to withdraw, at any time, your consent to the collection of your data. If during the research you no longer wish to participate, the data concerning you and acquired before your withdrawal from participation will be used by the investigator or his designated representative, unless you object. In this case, these will be destroyed.
These rights are exercised with the investigator or his designated representative who follows you in the context of the research and who knows your identity. You can also contact the Data Protection Officer appointed by Inserm by contacting her by email (dpo@inserm.fr (mailto:dpo@inserm.fr)) or by post (Data Protection Officer, 101 rue de Tolbiac, 75 013 Paris).
You also have the right to lodge a complaint with the Commission Nationale de l’Informatique et des Libertés – CNIL (French authority for the control of personal data).
